Diagnosis - Adenomyosis (

I have adenomyosis too, and they told me to take birth control pills, so I'm taking them now.

Are you planning to get pregnant? Birth control pills don't actually treat it, they just suppress the symptoms. I read that it's incurable, I'm in despair (

What utter nonsense, you can get pregnant with this condition, author, stop talking rubbish! Are you planning to already? I was diagnosed with signs of adenomyosis a year ago. Do you have symptoms?

I've been treating infertility for 7 years, went through so many examinations and different treatments, 3 years ago I had a diagnostic laparoscopy because everything was fine on ultrasound, but during laparoscopy they found endometriosis - small lesions, they cauterized them, then hormones, but pregnancy never happened, now they're sending me for IVF because stimulation didn't help either, and now on ultrasound they found Adenomyosis too, I understand that there's almost no chance, which means more treatment, hormones and possibly surgery, I'm so tired of this - I'm losing hope :(

Not yet, but I'm married. Yes, I read that too, but wouldn't it be possible to get pregnant after stopping birth control pills?

Were you able to get pregnant, or are you not planning yet? My only symptom is spotting after my period, it lasts up to 9 days. Do you have any signs?

It might not work, it doesn't help everyone. Many people have surgery and then get serious hormone injections and still can't get pregnant... Do you have any symptoms, like spotting or lower abdominal pain?

I also have prolonged spotting, I've had bleeding lasting up to 2 weeks, and mid-cycle bleeding.

These long bleeding periods lead to anemia, I'm already feeling weak :(

Me too. During my period I eat hematogen. But now I'm taking birth control pills and don't have this problem. They told me to take a course and then come back for hormone tests. Who knows what they'll say there.

Hematogen is crap now, not the same as before. I'm thinking about getting a ferritin test and starting to take iron supplements. I've read that with hormones the problems disappear, but you have to be on them your whole life and then other issues start... I'm afraid to take them, plus I want a child, but nothing's working out for 7 years already(

I also had one at 22, diagnosed via ultrasound. I got pregnant at 26 on the first try in the first cycle. Symptoms - normal periods for 4 days, then light spotting for 2-3 days.

Could it have been a misdiagnosis? Did you get checked again after that? I also have 4 normal days, then 4-6 days of spotting, and sometimes it starts painfully and my cycle is irregular, not sure if it's related to the diagnosis...

She got pregnant and carried to term with adenomyosis.

Really? How is your adenomyosis now, has it gotten better or worse, are there any symptoms?

If you had endometriosis three years ago, the diagnosis of adenomyosis now shouldn't have come as a shock if you've read articles about this condition. Endometriosis truly isn't curable; hormones only slow down the progression. I had laparoscopy to remove a cyst and cauterize the lesions, followed by six months of intense hormone therapy. I gave birth nine years after the surgery, after two years of trying to conceive. The issue wasn't adenomyosis but the specific structure of my uterus. Currently, ultrasound shows adenomyosis lesions, which were present before and during pregnancy. Author, this disease is probably common in almost every woman nowadays, and many give birth with it—don't be discouraged, find a competent doctor.

Guest 16, thank you. I read your message and felt a bit better; there's hope that everything will work out for me too. It's just that before, endometriosis was only detected during laparoscopy, but now it's visible on an ultrasound, which means it's progressing. My uterus is significantly enlarged, and the endometrium is thin, so I got scared that I might not be able to get pregnant. Probably, they'll put me on hormones.

Could it have been a misdiagnosis? Did you get checked again after that? I also have 4 normal days, then spotting for 4-6 days, and sometimes it starts painfully with an irregular cycle. I don't know if it's related to the diagnosis...
Yeah, I've been checked a hundred times already, now it's with me forever) but I don't freak out over it. It is what it is, screw it, I'm never taking hormones no matter what.

I was diagnosed with adenomyosis for about 6 years by different doctors. I never took hormonal medications. In the end, I got pregnant in the first cycle without contraception. After giving birth, no signs of adenomyosis remained.

Yeah, I've been checked like 100 times already, now it's with me forever) but I'm not freaking out about it. It is what it is, screw it, I'm never taking hormones no matter what.
I've read that sometimes childbirth can cure this crap, but hormones... well sometimes there's no way without them, many people suffer from pain and bleeding because of this Adenomyosis, that's what I'm afraid of, and I also read that it can turn malignant...( that's just terrifying, you need to be monitored constantly...

Yeah, I've read that childbirth can get rid of this condition, you're lucky, but I just can't get pregnant 😔

That is actually a symptom of adenomyosis. It's been 3 years already.

What are birth control pills?

Of course, a lot of time has passed, but I'm currently facing the same issue. And I'm planning a pregnancy. I wanted to know how things turned out for you, what worked out?

There's nothing good about this diagnosis. But it's important to understand the stage and type. Most doctors have recommended a hysterectomy for me. They say I should forget about carrying a child myself. But my uterus is enlarged to about 12-13 weeks. I have diffuse adenomyosis and fibroids.

Hang in there, everything will definitely work out for you! 💪

Author, good afternoon, could you tell me how you are? Did you manage to do it in three years?

I was diagnosed with adenomyosis after my second C-section... I've been having periods lasting two months with very heavy bleeding... I had a Mirena IUD inserted on March 27th... since then, there's been spotting and bleeding, but it's lighter than before... The doctors said this could continue for up to six months until the IUD settles in... I'm taking iron supplements because my hemoglobin is below average... That's how things are for now...

A year ago, I was diagnosed with this condition. For six months, I took Visanne (Dienogest), which has an antiproliferative effect, meaning it slows down growth and leads to a reduction in the size of endometriosis lesions. After six months, we managed to achieve ovulation, and I was able to get pregnant. I'm already five months along now! 😊

Happy for you. I have the same thing and also took Visanne for 6 months, nothing happened. Then I had laparoscopy with hysteroscopy - ultrasound shows everything is fine now and we've been tracking ovulation. But still nothing so far...

In developed countries, marijuana is prescribed by doctors for cancer patients, as pills are ineffective.

Same here, what are you planning to do...? I don't know.., I've already taken hormones

After the second C-section, everything worsened. I got pregnant quickly with the second child but was on bed rest throughout the pregnancy. For six years, I've been trying to treat adenomyosis—laparoscopy, hysteroscopy—but I can only use low-hormone medications because strong hormonal ones cause hemangiomas to grow on my liver and affect my blood vessels poorly. There's constant spotting.

My mother had a similar experience; she got an IUD, and with it, at 45, she developed a huge fibroid. They removed her uterus and appendages in an emergency via ambulance. Of course, she forgot about those problems, but early menopause at 45 really took a toll on her, especially mentally. It depends on the woman, but my mom has never been an easygoing person, and early menopause certainly made everything worse... but at least no uterus means no problems.

Sometimes, I do feel despair, but what can you do... I've probably seen a hundred doctors by now—different specialists, expensive and not. It was hard to even get a diagnosis, but still.

Many suggested an IUD or combined oral contraceptives without understanding that they cause hemangiomas to grow on my liver, and sooner or later, I'll have to remove them from my liver too. Some doctors don't even know such side effects exist. I was lucky to find those who do, although before them, I saw doctors who put me on COCs, and as a result, I have large hemangiomas on my liver.

Overall, in almost six years, I've realized that there are very few true specialists in this field, and not all treatments work the same for everyone—there are nuances.

Stay healthy!

After the first childbirth, on the 7th day, I was taken to the gynecology department by ambulance because the obstetricians didn't completely remove the placenta. They flushed my uterus twice and ended up scraping it out, which is essentially the same as an abortion... Three years later, adenomyosis was discovered, and I was diagnosed with infertility. I was prescribed Novinet and took it for 6 months. I got pregnant on the first try, but there was a threat of miscarriage. After the second childbirth, a year later, the symptoms started again. Very severe pain in the lower left abdomen, excruciating pain during intercourse, just unbearable. Another ultrasound, again adenomyosis, which had grown even larger! Now I've started taking Novinet again. I really want to get rid of this nuisance, at least to stop it from growing and causing pain. I'll be taking the oral contraceptives for 6 months. Then another ultrasound, and we'll see what happens next...

So, pregnancy doesn't cure endo/adeno?... And this crap will progress again(( I understand that only menopause or sterilization cures it ((

You've made me happy, God willing, I'll have the same too)))

He is undergoing treatment, but only with hormonal pills, which need to be taken according to the diagnosis, for one or two years with breaks. The dosage is prescribed by the gynecologist. While taking hormones—which also act as contraceptives—no one gets pregnant. But otherwise, everything is possible, both getting cured and getting pregnant. I had the same situation.

What is your degree?

Today I went to the gynecologist. Same thing as before. The diagnosis is adenomyosis. We want to have a child. Please advise on how to treat this nuisance.

Don't worry. You can get pregnant. The bad part is that it can't be cured. At 25, you won't be inducing menopause. But if you keep taking hormones or get a hormonal IUD, you'll gain weight. And at 25, you really don't want to weigh 100kg. Because who would want you like that? Anyway, I'm desperate myself.

Hello. Has anyone tried treating themselves with herbs? Like red brush? There's Donna Bella tea with red brush. For some reason, I'm afraid it might cause bleeding; one woman wrote in a review that it did. But all the others are satisfied. So now I'm thinking. Maybe it's causing hormonal imbalance and signs of adenomyosis.

Hello, I started drinking red brush and boron uterus tincture. A year ago they found fibroids and adenomyosis, I took Zoely for 6 months, and during that time I also developed an ovarian cyst. I stopped taking birth control for now and am drinking the tincture.

And how do you accept these stands?

I was prescribed endorpherin. Read about it. There are results.

I have it too, got pregnant on the first try, no problems

I'm in the same situation, I don't know what to do, can anyone give some advice?

I gave birth twice before and everything was fine, but now I can't

I was only diagnosed with adenomyosis in April 2019. Only after I pressured the doctor to figure out my pain instead of brushing me off. Basically, as long as I can remember, my cycle lasts 7 days. Bleeds like hell. Constant anemia. In 2015, my daughter was born (after a year of trying) via C-section. A year later, pregnancy again on the first try. Had a very difficult pregnancy. Second C-section. Then constant pain and PMS symptoms got worse every month. Temperature would rise, lower back would give out. And again, 7 days... Doctors said everything was fine! Eventually, from December 2018, I had a week-long delay every month. And prolonged spotting. And my uterus hurt. My gynecologist kept blaming it on the scar. That it was the scar hurting!! But I could feel that my uterus was hurting and bloating. Plus hormonal imbalance. Went to an endocrinologist, and only when she pressured my gynecologist did she order tests and ultrasound. Diagnosed with adenomyosis. Uterus like a ball at 12 weeks during cycle. Prescribed OCs. I've already switched 3 medications. Can't take them. My whole chest breaks out in rashes and spots. Colostrum appears periodically. Terrible hunger. Mood is awful... And is it true that I'll have to live with this forever, that it's incurable?

I also have adenomyosis and a fibroid. But I've given birth to two children. I can't take oral contraceptives, but I used the NuvaRing for five years, and with it, there was no spotting or any other symptoms of adenomyosis, and the fibroid didn't grow. Of course, everything is individual, but you could try the ring. After stopping the ring, the spotting returned.

Good day, how are you doing now? My periods turn into bleeding, and I was diagnosed with adenomyosis. I'm currently taking Duphaston. What was your treatment and which medications did you use?