Polyneuropathy of the lower extremities

What is the defining word - herpetic, diabetic, ischemic, vibratory .....

I have diabetic polyneuropathy in my lower limbs. I had an EMG done a year ago—motor functions in one leg and sensory functions in the other are below normal. Previously, my legs would cramp, and I couldn't sleep with socks on; the skin on my toes burned when touched. Now it's fine, I get Tiagamma injections three times a year.

I also have severe radial neuropathy in my left upper limb—that's where the real trouble is. At first, my arm stopped working; I was 14 at the time. Then it improved a bit after acupuncture, amplipulse therapy, physical therapy, massages, and d'Arsonval currents. Now I can use it a little—I write, peel potatoes, cut bread (fortunately, I'm left-handed, otherwise I would have neglected the arm). But it's drying out, noticeably thinner than the right one. If I stretch both arms forward, the left hand hangs limp, and I can't lift it up on my own.

May God help you.

Hello! I also had BERLITION IV injections, then oral tablets, NEIROMIDIN IM injections, now I'm taking GINOS; no improvements whatsoever. I can still move around the house, but I stagger when turning, and outside I walk very unsteadily (I feel numbness and stiffness in my legs). And I often get the feeling that everyone can see me walking with my "drunken gait". Now my left arm has started getting these electric shock-like sensations, the disease is progressing. It's really sad, I had to quit my job. Strangely, I don't share my painful experiences with my loved ones because I know they can't help anyway... We've been through so many neurologists, so many tests, so many injections and pills...

Acupuncture should first be done as a 10-day course, followed by a one-month break, then another 10-day course, a three-month break, and then another course. However, the doctor must be very experienced. Not just anyone can perform this correctly. It is necessary to strengthen the immune system (using mummy resin, chewing small pieces of calamus root, and ginger). To improve pancreatic function, one should try to walk more and drink herbal infusions made from common bean pods, bearberry leaves, corn silk, and knotgrass—all in equal parts, one teaspoon each, steeped in 300 ml of boiling water, boiled in a water bath for 10–15 minutes, and consumed as one-third of a glass three times a day. Follow the Breuss diet, which can be found online, and engage in therapeutic exercises. Avoid sausages, fatty foods, sweets, and flour-based products. Eat more fruits and vegetables, and prepare food by steaming or baking in the oven. Try to go without meat for one month. Good luck!

I wrote down what needs to be done. Maybe this will help you! Good luck!

Good evening, Ilmira! You described in such detail what needs to be done for this illness, are you also concerned about this problem somehow?

Olga, hello! So, how are things going with you now?
This disease has several forms: diabetic, toxic, chronic demyelinating, Guillain-Barré, etc... And the treatment outcomes vary as well. I have a rather complex form and have been undergoing treatment for over a year. The progress is gradual, but it's there, and that's encouraging. In my opinion, in our cases, three components are important: 1) Proper medication treatment prescribed by a competent doctor (including physiotherapy, massages, acupuncture, and spa treatments if there are no other contraindications). I won't list the names of the medications in an open forum to avoid self-medication ☺️.
2) Therapeutic exercises (again, if there are no contraindications).
3) And, most importantly, a firm belief in overcoming the illness, despite the current challenges.
I used to fall often, and bruises didn't have time to fade. My legs couldn't support me. I'd wake up in the morning, not even out of bed yet, and already feel tired ☺️. I could barely lift 1kg with my hands. Gradually, I worked my way up to 7kg dumbbells. I no longer fall outside, though I still stagger, feel unsteady, and walk uncertainly, especially on stairs without railings. But I pay no attention to people's stares. I stand by the idea that these are temporary difficulties that just need to be endured without losing heart. Of course, it's daily work, and you have to gear up for the fight. And also try not to catch a cold.
There are many cases where people recover quickly thanks to medication. As they say, it's all individual.
Wishing you success in your treatment and a speedy recovery!

Colleague, hello! You're absolutely right, we need to find a competent doctor, but where can we get one? If it's not too much trouble, could you advise? Address: rozzasavvina@mail/ru

What the hell, I wrote and wrote, and there's nothing here.

[quote="Colleague" message_id="63101165"]Olga, hello! So, how are things with you now? ,

Hello, Colleague! I'm very glad you responded to my troubles. I've been suffering from PNP for almost 5 years now. I get injections twice a year and take medication. In the mornings, I experience stiffness and heaviness in my legs. The constant tingling and pins and needles sensation in my legs is very draining, and this feeling is getting higher (it's reached my waist). I often lose my balance when turning, and sometimes I bump into door frames. I hardly go anywhere; if I go to the store, my husband drives me almost to the doorstep. I've also noticed: if I know someone is watching me, my legs completely refuse to obey, and it becomes difficult for me to walk. I can't go up or down steps without railings; panic sets in. That's how things are. Next week, I plan to get all the injections again (I don't go to doctors anymore; they have standard treatment). No neurologist has been able to explain why this disease occurred. I think it's all about the spine; an MRI showed protrusions, a hernia, and a cyst.

Yes, Olga, I can imagine what you're feeling—everything you've written about is familiar to me: the stiffness in the mornings, the panic, and all those unpleasant sensations in the legs. For me, it gets especially intense at night; I don't know what to do with my legs, everything feels uncomfortable, it's downright irritating. Through trial and error, I found pine bath salts for myself. They slightly ease these unpleasant sensations and are generally safe. Of course, you can't take such baths every day, but I do them in courses periodically, using warm water, not hot.

As for the panic, I fight it only with self-persuasion: telling myself everything is under control, I can handle anything. Fear comes from the mind, and it needs to be blocked. I remember being terribly afraid to cross the road, especially in winter when it's slippery. At those moments, my legs would feel as if they were made of wood; they wouldn't even bend at the knees. The fear was so paralyzing and restrictive. And the same with seeing stairs without handrails—I'd immediately start losing my balance. Although, in general, when there are handrails or a wall, I can go up and down just fine. So... we need to learn to block thoughts like: I can't, it won't work, etc. Of course, gradually, all within reason🙂

If you have personal experience in dealing with this condition, please share. By the way, do you do physical exercises? Did the doctors allow it?

If you have personal experience in dealing with an illness, please share it. And by the way, do you do physical exercises? Did the doctors allow it?

Good evening, Colleague! I have a bit of personal experience: Therapy (Neuromidin 20, Nicergoline 10, Combilipen 20, then in tablet form and Berlition—I don't think anyone would consider self-medicating), daily foot massage with castor oil, physical exercises for the spine (I have a set of 6 exercises with 3 sets each), and in the evening, I walk around the yard, forcing myself to move more, but it's getting harder now. Surprisingly, I fall asleep normally (I've gotten used to the tingling and pins and needles). I envy you for being able to stay calm; I can't manage that, but I'll try. How do you spend your leisure time, what do you do? How do you tame your illness?

Olga, I try not to pay attention to my illness and spend my leisure time just as I used to. I still go to the movies, theater, meet up with friends, and go for walks from time to time. I've even become somewhat kinder and more sociable))
Though, in winter, I hardly step outside because it's terribly slippery. I even attached spikes to my shoes, but my feet still slide around.
But overall, I don't fixate on the illness. Yes, it's hard. Yes, my pace of life has changed. Yes, there's a lot I can't do now, even simple things. But I try not to feel sorry for myself. Because I'm sure that once I start pitying myself, I'll stop making an effort, and things will get worse. And I don't want to let that happen.
"How do I tame my ailment?" I do therapeutic massages, acupuncture, physiotherapy, and take treatment courses periodically. And physical exercises, definitely strength training with dumbbells. Soon, I'm going to a sanatorium, hoping the waters will make me feel better. I'll write about the effect.

Good evening, Colleague! It's great that you have the opportunity to attend cultural events (theater, cinema); I don't have that, as I live in a village. I do meet with my family, and I try to make sure they notice my condition less—I try to sit more and don't even share my worries about my illness and the discouraging prognosis with my husband or adult children, striving to stay optimistic. May I ask if my therapy aligns with yours at least a little? Which sanatorium are you planning to go to? I have such plans too, but I'm a bit scared to go alone (I need someone nearby), and I'm trying to persuade my sister, but so far, alas...

Olga, if you have an email, please write to me at fokus-ten@mail.ru. It will be more convenient to communicate there.

Good evening, Colleague! No email, I'll be waiting for your impressions of the treatment at the sanatorium. Wishing you health and all the best!

Thank you, Olga, and I wish you health and patience as well. I have also taken the medications you listed. In addition, I underwent hormone therapy, immunoglobulin treatments, and plasmapheresis. However, I suppose the treatment may differ for various types of polyneuropathy. I am planning to go to the Kuldur sanatorium and will write to you in mid-March.

Good evening, Colleague! I visited the website of the sanatorium you're planning to go to, and they do indeed treat that specific condition. I truly hope it helps you. I'm planning to go to Kislovodsk, but their focus is more general—on the nervous system. Judging by the sanatorium's address, we live quite far from each other. What's the weather like there now? Here, it's raining, with temperatures at night around -3°C and daytime highs of +8 to +10°C.

Wow, we only get such temperatures around October and early April☺️ I live in the Far East, where the main frosts have already passed. Now it's around -14°C during the day, sometimes even -20°C. At night, it drops to -25°C. As for sanatoriums, I guess it's mostly the waters that differ, while most treatments are similar. In Kuldur, they have nitrogen-silicon mineral waters. They also say there are good sanatoriums in China, but probably a lot depends on the diagnosis too. Do you walk without a cane? I think the main thing for you is to get to the sanatorium with someone's help, and then you'll manage. You can arrange with the staff to check on you occasionally. You take care of yourself, as I understand.

Good afternoon, Colleague! I live near the regional city of Stavropol. Yes, I move around the house on my own and do all the housework, currently enjoying my well-deserved rest (though I don't really like thinking of myself as a retiree). Please tell me, how do you manage to get vouchers for the sanatorium, and is there any compensation for them? Getting to the sanatorium isn't a problem for me—my son or husband can drive me there (it's a 3-hour trip). What worries me is being helpless there, going for treatments—who will take care of me there? I will definitely set up an email, and we can keep in touch.

Ladies, could you please tell me if the Lyapko applicator helps you, at least to alleviate the symptoms?
My father has polyneuropathy of unknown origin. It's been going on for a long time, it's progressing, and he's in severe pain.
He feels better when he walks around the house in slippers with bumpy soles. So I thought, maybe I should buy some kind of needle mat? I started thinking about it in the context of looking for a birthday gift for him. I really want to give him something useful that might somehow ease his suffering. Maybe you could throw out some ideas? Some kind of sports equipment, a therapeutic device, ingredients for baths—anything at all?
Thanks in advance for your answers, wishing everyone well and good health!

Lynx, good afternoon!
It's difficult to recommend anything. Unfortunately, I haven't yet found any miraculous remedy that works perfectly. I haven't used the Lyapko applicator, but I do have spiky massage balls, and I think the principle is the same. Personally, it doesn't help me for long, but after a light massage, there's less discomfort in my legs. In the evenings, that's the only way I find relief. And the roller applicator with a handle is probably more convenient. Thanks for the tip—I hadn't heard about it. ☺️

As for the mat: if your father has good balance, look up balance cushions online. They're smooth on one side and bumpy on the other. You can step on it (the effect doesn't last long for me either), place it under your calf muscles, put it under your back, or sit on it—it relieves the spine. But is there any point in buying a simple mat if your father already has slippers with bumps? The principle of action for all these bumpy, spiky devices is quite similar.
For bath ingredients, sea salt with pine helps relieve symptoms. It's not an everyday treatment. Saying it "relieves symptoms" might be a bit of an exaggeration, of course. The effect is minimal, but still, it's something. 😊

Hello everyone. I've had polyneuropathy for five years. Two years ago, type 1 diabetes was discovered. But whether it's from the diabetes or not—none of the doctors can say. There could be many causes. These include neuroinfections, tick bites, systemic diseases. I've been checked for all of that—nothing. There are also genetic polyneuropathies. That's the tricky part. Tests can only be done in Moscow. Besides numbness, I have severe pain. It completely exhausts me. I have no energy. I took Cymbalta for a year. Gabapentin for a year. Now I've started Lyrica. That's for pain relief. And a bunch of other things... I take Ipigrix, Espalipon constantly, B vitamins. I went to a sanatorium—no improvements at all. The main thing is to know the cause that acts as a toxin for the nerves and erodes the nerve sheath. Otherwise, all the treatment is in vain. Eliminating the cause is the main task. Good luck to everyone.

A week ago, my feet started going numb. I don't know what it is. The doctors keep sending me for tests and suggest it might be either vascular issues or that I have such a neurosis. But I suspect it's from a herpes infection. I've already been tested for viruses several times. But I still need to get tested for types 6, 7, and 8. Tatiana, you write that we should look for toxins. Have you ever had herpes? Not on the face, but like shingles? Or just on your back or thigh?

Hello everyone. My symptoms started with numbness in my feet in 2012, which I initially linked to a poorly performed back massage. But now I'm not sure if that's related. Gradually, the numbness began to spread upward in my legs, and burning and itching sensations joined in my feet. Doctors couldn't determine the cause and suspect it might be hereditary, although no one in my family has had anything like this. For a while, I had severe painful cramps in my calves; I took Asparkam, and they went away. But the numbness and discomfort in my legs persist. An electromyography in January of this year showed impaired sensory nerves, with no S-responses obtained. I was diagnosed with axonal sensory polyneuropathy. My movements are fully preserved, but sensory disturbances are progressing, and muscle atrophy is beginning in my feet. I'm taking Neuromidin, Tebantin, Trental, and Milgamma three times a day. They told me I'll need long-term treatment, and there's no 100% certainty of recovery. I also want to ask the doctors if spa treatment is recommended, and if so, what kind. Maybe something like mud therapy? Girls, have any of you tried mud treatments, and does physical therapy help? If so, what kind?

Has anyone tried treatment with BEES? With bee venom? With live bees? Placing bees along the nerve and along the spine? If anyone knows about this, please write? Thanks. (Bee venom treats nerves, I read somewhere... that for neuritis... maybe PNP too, bee venom treats it, at least improves it a little?)

Hello. My electromyography doesn't show polyneuropathy, but I'm deteriorating. Muscle atrophy has already begun, it's visible. It hurts to walk. There's a feeling of tightness, soreness, as if muscles are being bound. My arms periodically go limp, more and more frequently. Constant bruising. My hands and feet are always cold. The skin has lost its turgor. Indentations remain from even light touches. Six months of treatment with Thioctacid, Thiogamma, Neuromidin, Kelticam, etc., have done nothing. My muscles get terribly tired even without significant exertion.

Hello. My electromyography doesn't show polyneuropathy, but I'm deteriorating. Muscle atrophy has already begun, it's visible. It hurts to walk. There's a feeling of tightness, soreness, like muscles being bound. My arms periodically go limp, more and more frequently. Constant bruising. My hands and feet are always cold. The skin has lost its turgor. Indentations remain from even light touches. Six months of treatment with Thioctacid, Thiogamma, Neuromidin, Keltikan, etc., have done nothing. My muscles get terribly tired even without significant exertion.

I underwent examinations for autoimmune diseases, thyroid hormones, MRI of all spinal sections, head, abdominal ultrasound, and had tests every two weeks. Nothing significant was found. It's driving me crazy, especially since I have a one-year-old child. I had previously taken a large amount of antibiotics without a doctor's prescription. I don't know what to do next. There were minor abnormalities on the myography, but the doctors don't consider them enough for a diagnosis, and I'm falling apart.

It all started for me after a Botox injection in my forehead. Over three months, my face sagged, my nose became like clay, the entire left side including my head went numb, my earlobes turned flabby like rags, and my muscles are atrophying. I'm 33. I don't have children. Is this really irreversible? I wasted three months on the idea that "the injection will dissolve and everything will pass" – as the doctor said. Who has been helped by Neuromidin? I've also heard about bee venom therapy and cold water dousing (the adrenal glands release hormones into the blood actively – as an alternative to synthetic ones).

I developed neuropathy from a tick bite (Lyme disease) and underwent a long course of antibiotics over six months... I've been injecting Neuromedin for four months with no noticeable effect yet, and Octolipen for four months as well, along with Mexidol... An EMG eight months after the tick bite revealed neuropathy in the tibial nerves of both legs... I've been undergoing bee sting therapy for three months, not sure if it will help or not... I'll do another EMG later to see if it has stabilized, worsened, or possibly improved.

What medications did you treat with? I've already tried everything, no matter how hard I try, the disease keeps progressing: my walking keeps getting worse, I stagger, fall, break my arms. I don't self-medicate, everything is prescribed by doctors, but there's no use.

I was diagnosed with Guillain-Barré syndrome 4.5 months ago. It started with numbness in a toe, then spread to the foot, knee, and thigh. Then I lost sensation in my legs, followed by my arms. I began having difficulty breathing. But thanks to immunoglobulin treatment, the disease was halted. Over time, my arms have almost recovered, though my wrists are still weak. But my legs are a real problem. The lower half of my body is paralyzed.

I suffer from severe back pain, from the lower back up to the shoulder blades. I have protrusions and osteochondrosis. Can you tell me how to restore mobility in my legs and if rehabilitation at home is possible?
Unfortunately, I don’t have the means to travel for treatment :-(

According to the EMG results, they said you're fine, but half of my body is going numb, along with both hands and my face, muscles are disappearing, and I'm unsteady. And this has happened over 4 months. Can anyone advise if they've taken blood tests for neuropathy—like antibodies to myelin, acetylcholine, or autoantibodies to neuronal structures? After all, EMG isn't an exact result that should confirm polyneuropathy.

Преднизолон в таблетках, процедуры плазмофереза, иммуноглобулин в/в, тиолепта, витамины В в/м и в таблетках, прозерин в/м, мексидол цитофлавин в таблетках. Это то, что вспомнила.
У меня сила то появляется (лечебная физкультура) , то снова исчезает. Походка тоже то более-менее ровная, то вообще легким ветром сдувает и ноги подкашиваются. Зависит от погоды, от простуды и даже от настроения.
Такие падения с переломами, как у вас, это страшно, конечно. Надеюсь, что вам удастся добиться ремиссии!

Natalia, what specific tests did you take? Are they literally called tests for neuroinfections, tick bites, etc.?

Marina, you should do physical exercises for your legs. Start with passive ones: using your hands or have someone else do them for you.
Then try to move your legs yourself, even if they don't move, tension is still created inside. But you have protrusions and osteochondrosis, so it's better to consult with a specialist. So you don't cause harm.

In diabetes, polyneuropathy is treated primarily by stabilizing blood sugar levels.

How are you doing? I've been diagnosed with this. Where should I start treatment?

Good afternoon! First of all, you need to see an endocrinologist.

I'm doing bee therapy, just finished 10 sessions, the only improvements are that I stopped swaying and veering, and the hypoxia is gone. I had terrible oxygen deprivation and nausea - the Botox from my forehead traveled along the nerves to my brain, poisoning me, that's why I have polyneuropathy. We'll see what happens next. But the loss of sensitivity hasn't recovered yet - that's the saddest part.

Who suffers from orthostatic hypotension?
Speak up.

Girls, our Russian doctor, who lives in Germany and has her own clinic there, recommended an IV drip for polyneuropathy to me:

250 ml of saline solution + 10 ml of Dimexide + 2 ampoules of 2 ml each of 2% Procaine + 25 ml of 8.4% sodium bicarbonate solution.

Please tell me, can there be an exacerbation after a Bioven course? And if the scan did not confirm Lyme disease, but symptoms are present—what could that be?

Sorry, my phone is autocorrecting. If EMG didn't confirm polyneuropathy, but symptoms are present - can that happen?

Have you tried getting this cocktail dripped? Was there any effect?

Hello!
I have medication-induced polyneuropathy in my lower limbs following tuberculosis treatment. I took isoniazid for about half a month, then they identified MDR-TB+, changed the regimens, and I mainly took Teriz, gatifloxacin, linezolid, pyrazinamide, moxifloxacin, clarithromycin, doxycycline. Neuropathy started in the 7th month of treatment, especially acutely felt in the hospital; Neurobulin, of course, throughout the entire treatment, I received injections and IVs of Actovegin, Reosorbilact, I remember Berlition, and took Milgamma.
After discharge, I took moxifloxacin, pyrazinamide, Teriz, clarithromycin for a year.
The polyneuropathy became somewhat lighter about 3-4 months after discharge, meaning I could sleep normally at night and the sharp tingling in my fingers stopped.
I finished taking the medications in the fall of 2014, but the pain still remains (I'll be honest—I slacked off on taking vitamins, got tired of swallowing pills, I confess(( I hoped that over time the chemicals would wash out... But it's taking so long... "Socks," i.e., "leg warmers"... stiffness in the legs (from the moment I wake up until I fall asleep), sometimes cramps, but rarely... pain behind the knee started relatively recently... I have a sedentary job, but I try to incorporate some exercise... I run, do a bit of stretching (stretching helps quickly but not for long), the "birch" pose, of course, belly breathing... In general, the pain sometimes intensifies, sometimes eases, occasionally I feel life in my legs, but not for long(((
Please help, advise me on what to do, which vitamins to take. I understand I need to get a grip and follow a treatment and exercise regimen, not haphazardly like I do... I'm really fed up with this situation. Of course, it's tolerable, but I start to get depressed when I think about how much time has passed and I'm still in the same place.

Greetings, everyone! I'm 55 years old, and it all started in 2014 with worsening cramps in my calf muscles. Just making a sudden movement would trigger them immediately. I took magnesium, calcium, and various vitamins as recommended by doctors—only temporary relief. Then, weakness in my arm muscles began; I couldn't carry a bag for long. After taking Panangin, it got better, apparently due to a potassium deficiency. Later, numbness and a burning sensation appeared. A neurologist diagnosed polyneuropathy and recommended an electromyography test, which confirmed it. I searched online for experienced neurologists in my city (I live in Yekaterinburg) but didn't find any based on reviews. Every year, I undergo bioresonance testing at a medical center. I consulted a specialist, a former neurologist. Currently, I'm undergoing treatment with bioresonance homeopathy and recommended medications (injections). The specialist asked me in detail about all my illnesses since childhood and concluded through bioresonance testing that I have an infectious polyneuropathy that has been present since childhood but manifested in adulthood. There's positive progress in the treatment; I've been under this specialist's care for a year. A plus is that she also specializes in psychosomatics, and we work through every psychological issue because everything starts in the mind. She says that recalling negative situations sets you back in treatment. At home, I do a daily warming foot massage, stretch my legs and arms thoroughly, and use tennis balls for back massage. I practice qigong exercises, which are great for stretching the body and are done statically. I wanted to share my experience in case someone finds their right path. Wishing everyone success in their progress!