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Trigeminal neuralgia

Trigeminal neuralgia

I do go to a neurologist, I'll say that straight away. I just want to know what specifically has helped you? I took Finlepsin, had Ketonal and Combilipen injections, none of that helped. I go for ultrasound therapy twice a year. The pain is every day, but bearable, aching. Are there people who've been cured? They also block it surgically somehow, has anyone done that? I just want to hear some reviews.

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Елена
957 ответов
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гость
#1
My neuralgia started after childbirth about 25 years ago; I was treated for about 2 years with physiotherapy and nerve blocks. But I had constant pain, especially in the evenings. What helps me is moxibustion with a cigar—using dried, ground wormwood in a paper tube applied to specific points on the face.
Аня
#2
I caught a chill a week ago. The pain was severe every day, starting at the same time each day.
I'm breastfeeding, so I can't take any medication. But I took ibuprofen for two days. Today it hardly hurts at all.
Гость
#4
I had trigeminal neuritis. My face became distorted. I underwent acupuncture 38 times. Now my face is back in place.
Гость
#5
Гость
Message has been deleted
Oh dear, that sounds terrifying. I just get regular pains... What caused your neuritis?
Гость
#6
I apologise for posting on a women's forum, but this illness affects everyone, so I'll share my experience.

Neuralgia occurs due to damage to the nerve sheath, with about 95% of cases being related to an artery or vein inside the skull being positioned too close to the nerve. These blood vessels pulsate and gradually wear down the nerve. The remaining cases involve physical damage to facial nerves or other causes, such as herpes. So, for those 95% of cases, there are only three options:

a) Take anticonvulsants (carbamazepine) and B vitamins and hope the nerve sheath repairs itself. Carbamazepine doesn't work for everyone, it has side effects, and the nerve sheath may become damaged again over time.
b) Undergo a nerve block, which essentially means cutting the nerve so it no longer feels anything, and the problem seems to disappear.
c) Address the root cause by having a decompression surgery, where a special material is placed between the blood vessels and the nerve to separate them.

I opted for the third option. The pain disappeared as soon as I woke up from the surgery (before that, it was unbearable, and Finlepsin couldn't fully suppress it). I was allowed to return to work a month after the operation, but there's a quite noticeable scar since they shaved the back of my head for the surgery. If it ever comes to surgery, God forbid, make sure to have an MRI first to confirm the diagnosis. Keep in mind that this is a rare condition—in cities like Moscow or St. Petersburg, there are only a few hundred cases. Many people are afraid and opt for nerve blocks instead, so not every neurosurgeon will agree to perform the surgery. Not all of them have the necessary experience; you need to find a doctor who specialises specifically in decompression.
Елена
#7
Гость
Message has been deleted
Thank you so much! Very useful information, I'll keep it in mind!
ринат
#8
I had trigeminal neuralgia in the third branch on the right side. There were excruciating pains that were unbearable (as if a powerful electric shock pierced the gum and spread across the entire face). I was afraid to move, and it was impossible to eat normally or brush my teeth.
I was taking Finlepsin and Halidor in massive doses.
In 2013, I underwent surgery, a trigeminal nerve root decompression, at the Burdenko Neurosurgery Institute in Moscow.
The pain disappeared, and now I can live a full life.
Анна
#9
Rinat, how much did the operation cost? And how soon after your initial application to Burdenko was it performed for you? Is there a waiting list? Thank you!
ринат
#10
Анна
Message has been deleted
The operation was done for me free of charge, under a quota. As for paying, such an operation cost 150,000 rubles at that time. I first went there in September 2012 and was operated on in early February 2013. Yes, there is a waiting list. Even if I were to have the operation paid for, I would only have been put on the waiting list for December.
If you have any other questions, you can write to me at biyusov.r@mail.ru
Елена
#11
My patients have found excellent relief with Neurodiclovit, a relatively new non-steroidal anti-inflammatory drug. It is much gentler than something like diclofenac and works significantly faster than its counterparts in alleviating pain and reducing inflammation itself. However, remember: only your attending doctor has the full picture; if you were my patient, it would be much easier for me to advise what would help in your case. As it stands, all questions should be directed to them.
Галина
#12
It all began in 2004. I was driving in the summer with the car window open. At first, the pain was mild and could be relieved with half a tablet of Finlepsin. Each year, the attacks became more frequent, and the pain grew increasingly intense. The recent episodes were simply unbearable, and Finlepsin hardly helped at all. I went to the Institute of Neurology on Volokolamskoye Highway in Moscow to see Professor Tyurnikov (I found a video online where he appeared on the Health programme with Malysheva). I was admitted and underwent percutaneous rhizotomy of the trigeminal nerve. The procedure is done under local anaesthesia and takes about 20 minutes. I had it done on the 5th of December. There is no pain now, but the right side of my face is numb, as if after dental anaesthesia when a tooth is removed. But there's no real choice here: either unbearable pain or numbness. However, facial expressions are preserved. The operation cost 25,000 and was paid for privately.
Галина
#13
Анна
Message has been deleted
I wrote about percutaneous rhizotomy of the trigeminal nerve. If you need details, write to g61@bk.ru
ирина
#16
Recently, I started experiencing pain in my ear and temple; it's a dull ache but bearable. I visited a neurologist who said it's trigeminal nerve inflammation, which I highly doubt. I had a CT scan done, and everything is normal except for signs of sinusitis. Can you tell me what this is and what to make of it?
Татьяна
#17
Good afternoon, ladies, could anyone please share if they've given birth with trigeminal neuralgia? My husband and I are planning for a second child, but with my neuralgia, I'm on Finlepsin for about six months at a time, then have a two to three-month break, and the cycle repeats. Has anyone experienced a similar situation?
Олеся
#19
Tatiana, neuralgia needs to be treated. If standard treatment isn't effective, surgery may be necessary.
However, my patients generally respond excellently to Neurodiclovit, which is far more effective than pure diclofenac due to its vitamin combination. And it doesn't have as many side effects.
While you're sorting out your treatment course, try taking Neuro Multivit vitamins; firstly, they have a good regenerative effect, and secondly, they provide strong pain relief.
Татьяна
#20
Олеся
Message has been deleted
Olesya, thank you for your response, I understand that you work as a neurologist. The neurologist I've been seeing for many years at our clinic is considered the best and she's never once suggested treatment like yours to me. I don't understand - doesn't she know about such medications? She always prescribes the standard set: vasonit, milgamma and finlepsin, and I practically take Complivit vitamins year-round. And I also undergo physiotherapy. Please tell me, what do you think about the treatment I'm being prescribed? Thank you.
Татьяна
#21
Татьяна
Message has been deleted
The treatment prescribed by your doctor can be considered an alternative to what I usually prescribe to my patients. The only thing I can say is that Neuromultivit (a B vitamin complex), for which Milgamma is an analogue, comes in a more convenient form for patients - in tablets rather than solutions for intramuscular injections. For many, this plays a significant role. Continue with the treatment prescribed by your doctor. And during your next visit, consult with them about the possibility of replacing Milgamma and Finlepsin with the medication Neurodiclovit.
оксана
#22
Елена
Message has been deleted
оксана
#23
I have been ill since 2010 and tried many different treatments. Currently, I have no pain. My treatment regimen includes: 10 sessions of laser therapy, 10 sessions in a barochamber, Milgamma injections for 15 days, 10 injections of Emoxipin. In the morning, I rinse my nose with hydrogen peroxide (30 drops in 50 grams of water), put 1-2 drops of hydrogen peroxide in my ear, and take hydrogen peroxide orally twice a day (15 drops in 50 grams of water, following Neumyvakin's method). In the evening, I inhale through the mouth with fir and eucalyptus oil, and use the AMT-01 magnetic device for warming therapy. While my cheek still feels warm, I apply "Star" balm. In the morning and evening, I take 0.5 Amitriptyline and one capsule of Lyrica. On an empty stomach in the morning, I take Thioctacid. Good luck.
Гость
#25
No surgery is needed!!! The best operation is no operation at all!
This is a very serious illness. Like any inflammation, it can only be treated with antibiotics. You urgently need to be admitted to the hospital.
In Moscow, there's only one hospital that specialises in this disease—Hospital No. 50, located between Dinamo and Timiryazevskaya.
Татьяна
#26
[quote="Tatiana" message_id="50615851"]The treatment prescribed by your doctor can be considered an alternative to what I usually prescribe to my patients. The only thing I can say is that Neuromultivit (a B vitamin complex), for which Milgamma is an equivalent, is available in a more convenient form for patients—in tablets rather than solutions for intramuscular injections. For many, this makes a significant difference. Continue with the treatment prescribed by your physician. And during your next visit, consult with them about the possibility of replacing Milgamma and Finlepsin with the medication Neurodiclovit.

Thank you!
Лена4
#27
I have the same problem((((( I have aching pains, my paranasal sinuses hurt (I've had two X-rays, both clear). My teeth hurt too, the entire upper jaw, more on the left side. Sometimes the lower teeth as well. I had a panoramic jaw X-ray—my wisdom tooth is growing improperly in the gum, pressing against the root of another tooth. But I don't think it could cause such pain all the way to the paranasal sinuses. Does Lyrica help if taken daily? As soon as I try to stop it, the pain returns. I've seen many neurologists—they just prescribe Lyrica and that's it. At the clinic, they don't even want to talk or examine me properly. I also bought a Master device for magneto-light therapy. Can you advise what to do next? Is there anyone taking Lyrica long-term? Do I have to take it forever now? Is there any hope this will go away? Finlepsin doesn't really help much. Maybe there's someone from Nizhny Novgorod—who can I turn to, which doctor? Thanks...
Гость
#28
A doctor must identify the primary cause of neuralgia! There can be several, for example: dental issues, sinus inflammation (sinusitis), viral infections... and others. A neurologist should order examinations and refer to other specialists for consultation to rule out (or treat) other conditions causing trigeminal nerve inflammation. The key is to find a good specialist who will prescribe appropriate treatment for each specific case.
таня
#29
After enduring prolonged suffering for over 20 years on Finlepsin, I underwent surgery, and it has been three years now. There is no pain at all. I had it done at the Institute of Neurology. Details by email.
Гость
#30
Гость
Message has been deleted
АЛИНА
#31
таня
Message has been deleted
HELLO. CAN YOU TELL ME WHERE YOU HAD THE OPERATION. I'VE HAD TRIGEMINAL NEUROPATHY FOR 7 YEARS. I'M LIVING ON SUPERDOSES OF "GABANTIN 300". I'M LOOKING FOR INFORMATION ONLINE AND PEOPLE WITH THE SAME ILLNESS WHO HAVE BEEN CURED AND CAN REALLY ADVISE WHERE AND HOW. THEY DON'T TREAT THIS WHERE I AM (KHARKIV). PLEASE TELL ME WHERE AND WITH WHOM YOU CONSULTED. IF I CAN CALL YOU - LET ME KNOW.
Гость
#32
таня
Message has been deleted
вика
#33
Alina, please call back on 0991181767.
Гость
#34
таня
Message has been deleted
илдар
#35
Personally, this remedy has been very helpful for me: crush a clove of garlic into a glass of milk, let it steep for at least three hours, whisk in an egg, and drink it all.
виктория
#36
Good afternoon. I would like to know the details. My address is vladik_nayda@mail.ru.
#37
I had trigeminal neuralgia, right during pregnancy, in the third month. My condition improved with injections of B vitamins, pain-relieving ointments, and complete rest. Some time later, as soon as similar symptoms began to appear, I consulted an osteopath on recommendation. He detected a displacement of the facial bones. Gradually, we corrected the defect, and it's been about five years now since I last remembered what it was like.
гульнара
#38
Has anyone had surgery in Chelyabinsk? I'm planning to go there. Would like to hear some reviews. I've been ill for 6 years now.((
ирина
#39
I don't know what to do, maybe someone can help, give some advice. I'm 32 years old. Two weeks ago, my right sinus and the top two teeth started to hurt. The dentist said my teeth are fine. A CT scan of the sinuses showed a small cyst, but the ENT specialist says that's not the cause of the pain.
The neurologist says there are no trigger points on my face, and it's not the trigeminal nerve.
I don't understand what's happening. Now, only the two teeth on the upper right jaw hurt, with the pain sometimes easing off and sometimes flaring up.
There's no electric shock-like pain, just severe pain in these teeth. Because of this, I have a headache.
I've read online that the trigeminal nerve can become inflamed if it's compressed by a tumour in the head. I'm terribly scared and cry all day.
I had an MRI of the head two years ago, which showed no abnormalities. But who knows what might have changed in two years.

I really ask for advice from those who have experienced something similar.
Thank you very much.
Гость
#40
Татьяна
Message has been deleted
Евгений
#41
гульнара
Message has been deleted
Took my mum to Chelyabinsk for surgery. They couldn't complete the operation, said her heart wouldn't handle it. They operate while you're awake, the pain is terrible. Now even Finlepsin isn't helping anymore. Don't know how to help her
Алина
#42
ms.ostoks
Message has been deleted
Good evening!!! Could I have the contact details of your osteopath? I've been looking for one for myself for a very long time.
Людмила
#43
Hello! I stumbled upon this website by chance. I have the same issue. I was in Germany, where they took a head scan and precisely identified where the nerve is intertwined with an artery, and that was it. They prescribed Lyrica (the German version) 25 mg, saying that small doses work better than large ones. And indeed, I managed a year on that Lyrica without any pain. Now, my daughter has left Germany, and I'm left without the medication. I'm taking the Russian Lyrica 75 mg, and it's doing nothing. The pain is terrible now. By the way, about surgery. In Germany, they told me that in my case, the operation is complex and not always successful. So that's that. I don't know what to do. I live in the Voronezh region. I'm considering going to a neurology clinic. But again, what's the use? However, on the forum, they mentioned a drug called Neurodiclovit. Have you tried it?
Гость
#46
Алина
Message has been deleted
I also got rid of my neuralgia with an osteopath: first we worked on neck issues, then on osteochondrosis - the pain kept getting less. And after a craniosacral therapy session, the facial muscle spasms disappeared. Now I'm not even afraid of drafts, whereas before it was impossible to even go outside with my face uncovered on a windy day. If you want, I can send you my doctor's contact details in a private message?
Гость
#46
Алина
Message has been deleted
I also got rid of my neuralgia with an osteopath: first we worked on neck issues, then on osteochondrosis - the pain kept getting less. And after a cranio-sacral therapy session, the facial muscle spasms disappeared. Now I'm not even afraid of drafts, whereas before it was impossible to even go outside in windy weather with my face uncovered. If you want, I can send you my doctor's contact details in a private message?
Петр
#48
I've tried many things, but I haven't found a better remedy than apitherapy! Moreover, not every doctor knows how to handle bees properly; finding a good specialist is very challenging... I was lucky—my daughter found the address www.apitherapia.ru online, I called them, and a skilled doctor came, explained everything clearly, and performed the treatment expertly. After 4-5 sessions, I forgot about this problem, hopefully for good. I've been sleeping peacefully for 3 years now; thank you very much to them.
Лидия
#49
Гость
Message has been deleted
Лидия
#50
Please provide your doctor's contact details. Although, I didn't catch which city you're from—I'm from Moscow.
#51
Лидия
Message has been deleted
Could you please give me your doctor's contact details?? djsm43@mail.ru
Любовь
#52
My mother has been suffering for about 20 years with trigeminal neuralgia. At first, they couldn't determine what was causing her pain. She went to the dentist. They pulled out almost all her teeth, but the pain remained just as it was. About 10 years ago, she had an operation. The doctor promised that the pain would go away. However, he also mentioned that this operation helps 95% of patients. Well, my mother ended up in the 5%. The operation was done, the money was paid, but the PAIN REMAINED. Now it's even harder to get rid of it. She's on medication. And I'm searching online for what else she can take to at least reduce this pain. NO MORE OPERATIONS. Treatment, treatment, and a good specialist are what's needed. There's always time to go under the knife later.
Нигяр
#53
Hello, is it possible that the neuralgia started because of a wisdom tooth? I'm 20 years old, and the pain began when I was 17, exactly when my wisdom tooth started coming through. Six months ago, the pain completely went away, and that's when we noticed the tooth had almost fully emerged. But for the last 3-4 days, these agonising pains have returned. They say I don't need surgery for now because I'm young and there could be issues with sensitivity. I don't know what to do anymore. Carbamazepine helped, but only in high doses. I want to start a family, but with this, it's impossible to have children.
Дарья
#54
Гость
Message has been deleted
Please share the contacts, and which city are they from?
Lira
#55
Hello! Please provide the contact details of the osteopathic doctor who helped you. I've also been suffering from trigeminal neuralgia for over a year. I've seen many doctors, and they all prescribe Lyrica or carbamazepine. Lyrica dulls the pain but not completely, and carbamazepine didn't help me at all.
Ирина
#56
Гость
Message has been deleted
Could you please share your osteopath's contact details?
Евгения
#57
Good evening, I have trigeminal neuralgia. You mentioned that you have an excellent osteopath; could you possibly provide me with their telephone number? Thank you.